Harnessing the Power of Patients

Transformative changes are happening in the life sciences industry, and companies cannot afford to continue to function as developers, marketers, and manufacturers of treatments. Rather, life sciences companies must become a critical partner in the delivery of healthcare.

Becoming a partner in the delivery of healthcare is a significant change, and in order to succeed new business models are needed. Life sciences companies must shift their focus to putting patients, and not healthcare providers, at the center of their strategy. Intuitively we know we must engage patients as they take a more active role in managing their health, but this is new territory for most life sciences companies. In a highly regulated industry we like to learn from the experiences of others, and early adopters of this approach are at a point where they can share outcomes and insights.

Recently Quintiles published a white paper titled “Harnessing the Power of the Digital Patient”. The report shares their approach focused on digital channels to engage and recruit patients for clinical trials. The report shares results from the Quintiles digital patient experiences beginning with the creation of Mediguard.org in 2007, ClinicalResearch.com in 2009, and more than 350 patient programs developed on behalf of their clients.

What resonated with me was that the core of the Quintiles digital methodology is building trusted relationships with patients and providing opportunities for patients to engage in managing their own health. Aren’t these the keys to success with any life sciences program whether it contains digital channels, print materials, telephone interactions, or face-to-face meetings?

The Quintiles digital programs resulted in streamlined product development, proven product value, and accelerating product adoption and adherence, specifically…

• Informing study protocol design by connecting with patients on-line to understand positives and limitations of individual protocols
• Supplementing investigator recruitment by leveraging the reach (ie, it’s global) and specificity (ie, the ability to tightly target the desired patient population) of the internet
• Driving study retention by cultivating long-term patient relationships
• Accelerating product adoption once the product receives regulatory approval by converting study participants into early adopters and leveraging them as product advocates
• Supporting market access by leveraging patient reported outcomes from clinical trials
• Helping patients maintain therapy by understanding patient motivation, providing value-based services, and enabling communication and learning

While these are specific results seen with digital programs, I think similar results can be expected with programs focused on building relationships with patients and empowering them to manage their own health. Many new technologies are available to achieve these goals. Patients need options so they can select tools that meet their needs and preferences from on-line communities and educational websites, to telehealth solutions that monitor patient vital signs and symptoms in their own homes, and nurse educator programs that provide 24/7 assistance to answer patient questions.

Ultimately, the most successful programs are designed around patient needs and use multiple channels for convenient and efficient opportunities to engage patient’s based on their preferences.

I’d like to hear your thoughts on how you are engaging patients and empowering them to manage their health. Have you, or your company, used innovative technologies? If so, please share your insights and experiences.

Look to the Future: Sharing Physician Visit Notes with Patients Improves Engagement and Adherence

More transparency and sharing of information is the way of the future in healthcare. A simple option is to allow patient’s access to their visit notes that physicians keep as a part of their medical record. Patients have a right to see their entire medical record including physician’s notes; however, this doesn’t regularly happen.

Very little is known about the impact on physicians and patients when they are allowed to read physician’s notes from their visits. There are a number of questions including…

1)  Would patients be confused or offended by the information included in physician’s notes?

2)  Would physicians feel they need to spend more time in writing their notes and would they experience increases in the number of questions they receive from patients?

To answer these questions a year-long study was launched to provide patients with electronic access to the physician’s notes from their visits. The study results were recently published on-line in the Annals of Internal Medicine.

Below are the key takeaways from this important study…

* 105 physicians and 13,564 patients participated from three sites in the US

* 11,797 patients (87%) opened at least one physician visit note

*  Of the 11,797 patients that opened at least one note, 5,391 (47%) completed a post-intervention survey

* Of the patients completing post-intervention surveys…
   - 77% to 87% of patients across the three sites reported that open notes helped them feel more in control of their care
   - 60% to 78% of those taking medications reported increased medication adherence
   - 1% to 8% reported that the notes caused confusion, worry, or offense
   - 20% to 42% of patients reported sharing notes with others

* The physicians reported...
   - The volume of electronic messages from patients did not change
   - 0% to 5% from the three study sites had longer patient visits
   - 0% to 8% from the three sites increased time spent addressing patients’ questions outside of visits
   - 3% to 36% changed documentation content
   - 0% to 21% took more time to write visit notes

This study is important because it demonstrates that increased information sharing between physicians and patients increases patient engagement. The impact of this study is…

* A significant number of patients (ie, 60% to 78%) reported increased adherence to medications. Historically, only 43% of patients that start a prescription therapy are continuing that therapy 6 months later.

* The majority of patients (77% to 87%) felt that open notes helped them to feel more in control of their care. This is incredibly meaningful and a key component to empowering patients to take control of their health.

* Overall physicians saw no more than a modest effect on their work lives by sharing their visit notes with patients. This data should help physicians overcome concerns they have in adopting this practice.

 Changes in the healthcare industry are driving the emphasis on decreasing healthcare costs and enhancing patient outcomes. Patient engagement and adherence are critical to achieving these goals, and this study supports open sharing of physician visit notes can have an impact with little additional time investment from physicians.

In the future, the industry must support initiatives that empower patients to take responsibility for managing their health. This is a very personal issue, and what motivates one individual may not work to motivate another. Innovative ideas are needed. Ultimately, many approaches will be combined to form a customized solution that is effective for an individual patient.

At Tunstall AMAC we are focused on helping build and maintain relationships with patients, caregivers, and healthcare providers to drive awareness and knowledge, support patient adherence, and empower patients to take charge of their health. We offer a wide-variety of personal emergency response and telehealth devices that can be used in the home-setting, and we provide 24/7 monitoring and click-to-chat support services to provide support, information, and educational materials to patients, providers, and payers. Our services combined with open sharing of physician’s notes can increase patient empowerment.

We recently published a white paper on how to develop successful patient and caregiver support programs, as well as emerging trends being used to deliver customized and personalized experiences for patients. If you’d like a copy of the white paper titled “Increase Patient Adherence and Do More with Less”, please click to request it.

I’d like to hear your thoughts on the open notes study. Do you think this practice is likely to be widely adopted by physicians? What other innovative solutions do you see for empowering patients to take responsibility for managing their health?

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